Almost forgot about this. Well, here I am. It's been a long time, wow, a really long time. We've probably had about 6 hospitalizations since the last blog. Christopher is more bionic now. He now has a port. This helps to lessen the trauma of hospitalizations and blood draws. I can't tell you how grateful I am for these odd devices my son lives with. The g-tube has increased his weight from the 5th percentile to the 80th ish percentile for weight. He still struggles with eating, and I've pretty much let that go. He will eat by mouth when he wants to eat by mouth. I'm more concerned with his spiritual, mental and emotional well being than I am with his ability or inability to eat a taco. He is now serving in the Altar at Church. This is huge. He tends to make little balls with the wax and stares at the flame in the candle, but he loves doing it! There are times when he's fallen asleep in the altar. What a wonderful, peaceful place for him. If people think this is not ok, so be it. My son is at peace in the heart of the Church and if he feels safe enough to fall asleep there, then nap away Christopher!
