Sunday, November 13, 2011

Still here.

We're still here.  We tried to give him pedialyte and a little formula this morning and he threw it all up and more!  So...now we will start TPN tonight.  The docs want to continue to try and use his tummy so we're doing 5ml/hour with a pump.  The doc thinks it's psychological.  She's smoking crack! We go through this thing where the docs don't listen often.  So, we'll try the pedialyte and if he holds it down great.  If not maybe the doc will listen next time.

Here's the crazy thing.  This morning when I started the pedialyte I knew it wasn't going to work so I asked the nurse to go ahead and ask that the TPN be made.  I told her if he ends up holding it down great we just won't use the TPN.  Then she told me that won't work.  Bottom line is that it was about the money to make the TPN.  If it isn't made by 1pm then it won't happen til tomorrow and he wouldn't get it until tomorrow night.  I wanted it made just in case and that wouldn't work for them because it would be wasteful.   I about went through the roof.  It was almost like if I wanted my son to get the TPN tonight instead of tomorrow night he had to throw up, so we couldn't take our time to see if he would hold things down, it had to be done quick so there would be time to order it.
Anyway none of it worked so he'll start TPN tonight.  Good thing he threw up before 1pm..grrrrrrrrrr

The ENT also came in and we discussed his sinuses and that there was some sort of infection.  The WBC did go down but I convinced the ENT to check his WBC again to make sure it stayed down.  If it is back up we may do another CT of his sinuses to see if the infection is there.  We got to use the port for the blood draw!  Awesome, no pokes.  He looks like a pin cushion all ready!
He's sleeping soundly now...he needs it...

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